Post-it notes

    This past week has been very busy! Monday we went to the Neurologist (for the first time). She is recommending that Eli get leg braces for support. After talking to the PT later on that day (Eli had his evaluation) we decided to order the braces. I'm anxious to see how he does with them! He is so close. He is definitely wobbly and falls down within a couple seconds of standing by himself, but he's fine with a little bit of support. The neurologist also scheduled an EEG because he has been having blank stares lately (trying to rule out seizures). I am praying that is not the case!! He may be getting a more detailed MRI as well. She's going to look at the last one and see if it is neccessary. Mike and I both really felt comfortable with this doctor. You always want to know your child is in good hands and we feel that she will do whats best for Elijah. All this was very overwhelming, but in the end all i need to do is look at Eli and I know that none of it really matters. He could have a million tests and scans and people saying things are wrong, but all that matters is that he is a happy, social and loving boy!!
   We would like Eli to be around other kid, at least by the Fall, so we started our search for a center based pogram. Tuesday, we went to the ECLC (a Franklin County Board of DD facility) to look into their preschool. We feel that it would be OK for one year, but weren't that impressed. So, I contacted someone from Nisonger, if her title isn't Parent Advocate, it should be. She was SO helpful by giving us some different options. I have a whole new respect for my parents at school, along with all parents with children who have a disability!!
    Needless to say, it has been a busy week with lots of post-it notes....


P.S. I decided to write this blog for a few reasons...1. To update family and friends 2. Connect with other families in a similar situation 3. A journal to look back on (for me and Eli)